Sunday, May 18, 2008

Getting my list together

This week I'll finally have my 6-month checkup with the oncologist. We got delayed a couple of times, but it should happen this time. I mentioned the upcoming date to my friend, Sue, who is also a survivor (Hodgkins and Breast cancer, an amazing woman!). She asked if I had my list ready. She says every time she visits the oncologist, she has a pre-written list of all the questions and concerns she has, it helps make the appointment more productive. She says her oncologist now just asks her for the list when she comes in!

I do have a list that I'm working on. So far it includes:

TAMOXIFEN ISSUES
1. recurring corneal abrasians and corneal infections
2. hot flashes/night sweats
3. power surges and heart palpitations
4. mood swings and "the fog"
5. water retention
6. weight gain that is faster than I can possibly be eating, particularly while training
7. gynecological stuff
8. monthly migraines (I used to get them about once a year, now I get them once a month)

OTHER
1. recurring pinching across the chest wall

Basically, I'm going to ask him what, besides the Tamoxifen, I can do. I already posted about talking to my ob/gyn about more surgery to remove my ovaries. So, I'm going to ask him about that and if there is another drug I can try.

It is strange to think about seeing a doctor and bringing a list for pretty much the rest of my life. Right now, it is a long list. My hope is that, someday, the list will be much shorter and the decisions will be much easier.

No comments: