On hold, again

This morning I saw the rheumetologist again. This was supposed to be the appointment where all the tests I've had done at all the various labs and doctors gave us a firm path for treatment.

It didn't happen that way.

While there seem to be some positives, the fact that I keep getting sick is not helping anything. They can't put me on immunosuppressents while my immune system is down from being sick because I'd just get sicker, but I can't take any supplements or vitamins to really beef up my immune system because that could trigger the Sarcoidosis to start attacking my soft tissues.

So, now I have to go to the Pulmonologist to have him check out my CT scan and test results to see what, if anything, he can do to help deal with the chronic cough and shortness of breath. While I do that, the rheumetologist is asking for more results from the surgery to check on some additional tests that should have been done. Then, I go back to see him in 5 weeks.

When I was diagnosed with cancer, it felt like everything happened in warp speed. All the doctors had an urgency and they wanted to start treatment right away. I get that, cancer carries a serious prognosis.

Now, with the auto-immune disease, it feels like just getting to the point of understanding what is happening is taking forever. I understand that auto-immune disease carries a far less dramatic consequence than the cancer did, but it also means months of waiting to feel better that carries with it its own frustration and fear.

Today the doctor asked me if I had any questions. My first question was how and why did I get Sarcoidosos. Answer: I don't know. My second question was is there a relationship between the cancer last year and the auto-immune disease this year. Answer: No, just bad luck.

OK then.