Sunday, January 18, 2009

Learning More About Sarcoidosis

I keep seeking out information to help me better understand Sarcoidosis. The doctors I've seen have, to a one, been less than helpful when it comes to figuring out how to get rid of it. They all seem to be saying that I have to wait out the flare up and hope it then stays in remission.

I'm not big on waiting things out. I want the flare up gone so I can stop the coughing and get on with my life. To that end, I'm trying to get the asthma treated properly, I've started taking more anti-inflammatory supplements and am being very diligent about the exercise.

Today I was pointed to a Medline tutorial that breaks Sarcoid down into its parts and gives a layman's spin to understanding it. While it also doesn't say getting rid of it is an option, it at least helps explain the disease progression a little better - http://www.nlm.nih.gov/medlineplus/tutorials/sacroidosis/htm/index.htm

I haven't seen these tutorials before. They have them for lots of conditions! http://www.nlm.nih.gov/medlineplus/tutorial.html

This week I go back to the rheumetologist. I've decided to be far more direct with him. Instead of letting him just draw more blood and do more tests, I want him to answer one simple question. How do I get the flare up to stop - NOW?

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