A month into the new treatment plan and it is not working like it should. So, when steroids aren't working, the course is to simply increase them. So up a bunch more every day for a month and then see how it is going. My poor husband...
In the mean time, we have to add some medication to help the mess that my stomach has become from the steroids, and I may need to have some tests done on my esophagus because swallowing seems to be problematic; yet another sarcoid issue no one told me about.
Yes, I'm being whiny and I know it. And I do have some perspective, it is just that it all seems like too much some days. I have one friend who is still in treatment for Lymphoma and another who just got out of the hospital, again, whose body seems to be trying to defeat her at every turn. I'm trying to help my mom, who is helping her friend who has breast cancer and can't face the reality of treatment at all. And tonight I have a call with the friend of a friend who was recently diagnosed with breast cancer and is dealing with her diagnosis and wading through the myriad treatments and doctors that she is facing.
And then there are the hundreds of thousands of people in Haiti.
Some days I seek strength and wonder where and how to find it when everything I see just seems so overwhelming.
Wednesday, January 13, 2010
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